Marfan Syndrome - gLad tO bE onE of thEm..

Its been 3 months since I've discovered that I have this very strange and rare genetic disorder.

People used to tell me that I am so skinny and everytime I remove my tops they would see my sunken chest and it just looks so bad. They also used to tell me that I am so lean especially my classmates and I've worked on it everday of my life. But those are just the simple symptoms of the so called "Marfan Syndrome". It is a connective tissue disorder which affects various body organs like the HEART, LUNGS, EYES, and etc.

When I was in grade school I used to experience strange occasional chest pains and it could make me cry because it's so hard to breathe. Until now I am still experiencing it and everytime it would happen I always say that I'm gonna die. Because I can't breathe deep and if I would it would even hurt much.

A month ago we went to a doctor and he confirmed that it's really Marfan Syndrome. The doctor advised me to go to a cardiologist to measure the size of my heart. He said that if my heart already started enlarging there's a possiblity that I would die soon. And it makes so down. After the measuring my heart, the doctor said that it has already enlarged and it's really larger than the normal heart size. And it just means that.. I'm gonna die.

Though it's so hard to accept it but I had to. There's nothing I can do.

But I'm still glad that I have this disorder.

Right now I am being studied by the teachers in our university. I am grateful because I did a little help for the teachers. They even said that they already have a model. hehE..

I'm so glad because I did helped them and now they can make researches about Marfan Syndrome. :-/

Before anything else.. I just wanna thank all the people who became a part of my messy life. Thank you for all the things you've done.

I just wish before I die I could help my family. It's the reason why I tried this blogger thing for the reason that earning money here is easy - they said (just being crazy before I die.. hehE).